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Since 2006 Julia Black and Rose Woodward (both cancer patients themselves) have been guiding patients through the nightmare process of applying for NHS funding for kidney cancer drugs; offering guidance and advice and even appearing at appeal panels to provide personal advocacy for patients denied NHS funding for their kidney cancer treatment.
On this website you will find standard letters and advice to guide you through this process. We will also provide the evidence dossier necessary for you to put forward the best possible case to your local health authority to secure NHS funding for the treatment your consultant oncologist wants to prescribe for you. This evidence dossier will be prepared according to your particular individual situation; please email us for further details.
This website is the result of that work. Many patients and families have told us how much it meant to them to actually talk to someone who really understood how they felt. When we put patients in contact with each other to help with funding appeals, they told us how much stronger they felt knowing they were not alone...and so the Kidney Cancer Support Network and this website came into being.
The Kidney Cancer Support Network is not a formal charity and nor do we want to be – in fact we don’t even have a bank account! Rose and Julia continue to do this work on a totally voluntary basis and because we wish to remain independent, we do not take funding, favours or grants from any Pharmaceutical Companies.
We do not want to charge any sort of membership fee or subscription to join the Kidney Cancer Support Network. We want all Kidney Cancer patients to be able to have the same help and support. To do this we have formed an alliance with the UK’s leading kidney cancer charity, the James Whale Fund for Kidney Cancer. If you would like to make a donation or fundraise to help us carry on the work we are doing, then please make a contribution to the James Whale Fund for Kidney Cancer who provide practical support for patient initiatives like this website and are very active in raising awareness about kidney cancer.
We will also continue to work very closely with the Kidney Cancer Resource which is a patient maintained website for kidney cancer patients, clinicians, nurses, journalists and researchers who need in depth information about kidney cancer. Please visit their websites for ways you can help raise awareness of kidney cancer and help with research into this devastating disease.
Please let us know if we can help in any way. Email Rose or Julia
Very best wishes from
Rose Woodward & Julia Black |
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